And now, the rest of the story.

(Sorry for the delay. Zorak beat me to the computer last night, and I couldn't outlast the Medal of Honor combat.) So, picking up the story...

This morning, I left the kids with LB. They were having a beautiful breakfast, planning feats of artistic creation that are best performed when I am not home.

I picked up the ultrasound films and headed to the appointment. Small mix-up with the scheduling. They told me ten. They wrote down down eleven. Then, I actually got there early (it's a new thing I'm trying - not panning out so well, to be honest), so that made for a lot of sitting and mocking of the various sales propaganda. (Hey, Baxter makes a large variety of dialysis machines, but they don't seem to know squat about diet, other than, "food and drink are the primary causes of waste". Aren't ya glad you asked? Oh, you didn't ask. OK, nevermind. Moving on, then.)

In a nutshell:

The N-Doc (Nephrologist, but N-Doc is shorter and catchier) asked me to fill him in, because he could not make any sense out of ex-Doc's notes. (His words. I swear I am not projecting.) So, I filled him in on the ongoing pain, my tendency to compartmentalize (aka: ignore) pain, the fear-of-cancer that spurred me to go in, our relief at finding it's not cancer, and our current frustration that ex-Doc refuses to listen to my concerns regarding Life, the Universe, and Everything. (Or, more specifically, the pain, the kidney, and the ultrasound.)

N-Doc looked at the radiologist report. He asked to see the films. He took one look and had no trouble finding The Thing That Isn't There. He said, without fear of reprisal, "Well, that looks nothing like nephrocalcinosis! That looks like a huge stone. Or two stones. Or, I don't know what, because it is in an odd place for stones. But it is definitely NOT nephrocalcinosis." (And yes, the report said "nephrocalcinosis", not "nephrosis", which is what ex-Doc had said it was.)

As a matter of fact, he was surprised to find that the radiologist's report bears no resemblance whatsoever to the images on the film, other than that it's about kidney. And both have my name at the top. (The film, not the kidney. Although that might not be a bad idea...)

He agrees that we need to know a few things:
A) What is that?
B) Why am I making things like that?
C) What can we do to make it stop?
D) Is there anything else in there that might indicate a pattern?

He said the fact that it's unilateral is odd, for stones, considering the sheer mass of the thing (or things - he wants to find out more on that end, too). The placement is odd, for anything. The size is "impressive", according to him, and when I said I really had no desire to pass something that size on my own, he snorted and said, "Oh, you couldn't. I can tell you that, right now."

All of the things I suggested to ex-Doc, which she poo-poo'd and blew off, and accused me of making things up? Yeah, he brought them up on his own:
A) 24-hour urine test to determine the makeup of whatever that is
B) Dietary modifications, if/as indicated by further test results
C) Um... oh yeah, further tests

I go in for a C/T scan tomorrow, so we can get a better picture of Joe (KathyJo named it for me). And then I have the following week to just enjoy the kids, the family, the friends, and the weather before my follow-up consultation. But there will be a follow-up consultation! Yay!

Just another reminder that we've got to pay attention. We've got to be willing to educate ourselves about anything we might come in contact with. And we've got to keep going until we get answers -- clear, upfront, above board answers.

THANK YOU, all for your continued thoughts and prayers. For your words of encouragement and kindness. I can't tell you how much that meant.

Kiss those babies!
~Dy