PET scan in April showed complete remission. I'm really glad for that. A side effect of chemo I hadn't anticipated was the chemo brain. Suddenly, I was totally incapable of doing the *one* thing I've done for the last 17 years - managing our home. It's taken me about that long to get good at it, and suddenly, *POOF*, gone. I couldn't do it. I couldn't interpret a calendar. I couldn't remember what we were supposed to do. I couldn't formulate complete thoughts that led anywhere. It was like living with the Cheshire Cat in control of all cognitive processes. That pretty well tanked all my good intentions to have blog entries about the chemo process and beating cancer (because I totally had no intention of losing this one). Not that anyone would have known that, had I lost. (Aaaannnd, someone's talking to me, again, in spite of the fact that I'm typing. This is significantly easier to cope with when I have my brain back, but I've gotta tell you, it still makes me feel stabby.)
Anyway, we did it. We survived. And now, we're picking up the pieces. There are more pieces than I'd expected. It's like coming out of an amnesiac state only to find your family has suffered some kind of traumatic event that you don't quite know how to address. But we're working on it.
We're also piecing together the educational train wreck that was our Year of Unintentional Unschooling. Turns out, we're lousy unschoolers in general, but not entirely. The kids have continued to learn, in spite of the bizarre circumstances. And I'd wager that the stress of Educating with Dory was less of a hurdle that trying to maintain an institutional schedule would have been. So, there's that. Hurrah for Unintentional Wins!
You want to know what the best thing is for a family surviving chemo? Good friends. I don't mean well-meaning people who can't quite make eye contact but they feel really badly for you. I mean the kind of friends who will take your kids while you have a bone marrow biopsy. The kind of friends who will take up the slack in your co-op schedule because you can look straight at the syllabus and not be able to say whether you need to prepare for oxidation or molarity next week. Because words are hard when your brain doesn't work. The kind of friends who will still be willing to sit and chat with you about over coffee about normal stuff - the weather, books, the upcoming art festival, books-that-aren't-about-cancer, the last Scout trip, and maybe books. I can't tell you how much that means when you're in the middle of a weird experience that you don't want to be in, that doesn't necessarily have an end point, and that may not have the outcome you'd banked your very life on. Be that friend. Have that friend. We were so, so blessed to have more than one, and I just hope I live long enough to pay it forward, backward, and under the table. Because these people were the real sanity savers.
And that, my friends, is so much more than I could have wished for.
Be encouraged!
~Dy
3 comments:
As a long-time reader who has been checking and wondering, I'm very thankful for your good news!
Thank you, so much!
Wow, Dy, I had no idea. I lost your blog somewhere the past few years with all the craziness of life. I'm sorry that you were sick, but I am so thankful that you are in remission now! What wonderful news!
My kids were 3 & 5 when I was diagnosed with cancer. It surely changes your life, but I am thankful that I have been around for the past 13 years to see them grow up.
Looking forward to catching up with you and your family.
Hugs
Kathy
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