Friday, September 25

FALL IS HERE!

It's my favorite time of the year - time to sit on the balcony in the mornings and shiver with a cup of coffee. In a little while, I'll be able to grab a hoodie and curl up. This is the reward for surviving the Summer, and it is awesome.

In the meantime, this is also the time of year when ALL THE THINGS need doing: ACT registration, PSAT registration, clearing leaves off the roof and driveway, last mow of the season, winterizing the home, planning for the holidays. Additionally, there's driver's license road exam (James), permit (for John), switch out the clothing (gah, the basement is the bane of my existence these days), and staying on task for school.

About the only thing we're not doing this fall that we normally do is getting firewood onto the porch. We took the wood stove out in April when we built the wall, and there just isn't anywhere for it to go, now. Fortunately, we have a dual fuel HVAC system - heat pump and propane - so we're all set for winter. It'll be different not having wood heat this winter, but I'm more than a little excited about not having the master bath be ass-bitingly cold in the mornings. There's an up side to everything.

Meanwhile, school is going along swimmingly. (It's actually going well, even without grading on a chemo curve!) The older boys are enjoying Lost Tools of Writing. John even mentioned the other day that he took out his ANI template in order to write a history essay. "It really helped!" (Oh, hallelujah!) **** James is hoping to sign up for AoPS' Intermediate Counting and Probability class in November. I'm just hoping they don't fill up before I can get the registration done. **** Jacob has stopped glaring at the First Form Latin videos (years of butchered pronunciation on my part is making the transition to their pronunciation difficult, regardless of how much more clear and accurate theirs is - I've apologized, but change is hard).****  Em and Jase are loving - absolutely loving - Memoria Press' Insects study! That was a sleeper win that I wasn't expecting, and I am so thankful for it. It's been helpful that we started early enough in the year that insects have been plentiful and given us ample opportunity for sketching and observation.

We'll be taking a break in a bit to enjoy the Autumnal weather, make some warm cider and read some books just for fun. I'm looking forward to that the way a six-year-old looks forward to Christmas morning. Good stuff.

Be encouraged,
~Dy

Saturday, September 12

Saturday Doings

The boys collected donations this morning to send BSA popcorn to the troops overseas. Now John's nerding with his People. James is doing the school work he couldn't get done during the week, and JakeRabbit is wandering about, pretending to be looking for his copy of Ivanhoe... Z put up the brick molding on the new door. I used the time in town without children to pick up some much needed garments (also decided I need to drop a good 30 pounds and spend all the grocery money on Target's fall line - PONCHOS, people! They have ponchos! ~swoon~), ran laundry, and got in some work.

The Littles played video games until Em wandered in to lie on the couch and stare pitifully at anyone who wandered by as she whispered, "I'm hungry..." (This is a clear case of Video Game Head. There was bacon, pancakes, and nut butter all within arm's reach. She didn't have to languish on the couch. But I'm convinced video games turn my otherwise intelligent children into garden slugs.)

Every few minutes, people switch it up. JakeRabbit runs a load of wash and then plays Modern Warfare 3 with Z. We check with James to see how his Japanese is coming along and he is reminded that he's not, in fact, supposed to be playing TeamFortress2, but is supposed to be doing the work he didn't get done during the week. (This is always a surprise to him, based on the "Oh," he utters when we check.) Jase is loving the goat simulator on his brother's tablet, insisting I watch as his penguin self slides about, or his goat version licks random passersby. It's a gross looking game, but I'll probably see about getting it on my tablet because sometimes you just want to be a giraffe on a trampoline. I'm a little concerned about starving to death, though, since I doubt Video Game Head is limited to just children... But first, some reading and a snack.

The weather is gorgeous. Fall is coming! Tonight's low is in the high 40's, which means if it doesn't rain, there will be coffee on the balcony in the morning! These weekends are perhaps my favorite in the cycle of days. They are quietly busy, relaxed and pleasant.

Be encouraged ~
Dy


Friday, September 11

Half-Way Point

We got the results of the scan today, and we're on track to wrap this up in November. It's not gone (it may never be gone), but it is responding, and the scary bits have backed off quite a bit. I didn't realize until we got back in the car that I'd been holding my breath, so to speak, since the scan. Prior to that, I'd been so busy bracing myself. Once I exhaled, I was left with a deep tiredness. Happy, yes. Thankful, certainly. But mostly exhausted. *whew* What a ride.

At the halfway mark, I've noticed a few things:

* I'm not getting the awesome weight loss I'd hoped for. Hrmpfh. But now that the masses aren't pressing on my arteries, I can get back to the gym. Maybe give things a boost for this last few laps.

* While food smells don't make me sick or nauseous, I'm not loving food the way I normally do (and I DO love me some food!) I still eat, but I can't remember the last time I was legitimately hungry, and I sound like Ben Stein when I compliment the food. (Go ahead, say, "this is delicious" or "this is great, thank you" using his monotone inflection. You'll laugh at yourself. Or at me. It's OK. I laugh at myself, too.)

* Still not 100% okay with the thought that this is a life-long chronic condition. However, a friend said something at the onset of this that another friend reminded me of today. It's going to be my focus for the coming months: a lot of people die with lymphoma, but not many people die of lymphoma. (If you tilt your head a bit and half-smile when you say it, that's actually very encouraging. People die with acne, or with a lisp, or with a cowlick, too. We all have things we'd like to change. But still we live.)

* When you don't look sick, people forget that you need help. You have to ask for it. Sometimes, you have to sit on the couch and announce, "This is low immunity week and I am not moving until there is somewhere safe in this house for me to move to."

* Moving helps. And sometimes not moving helps. It's important to listen to your body without guilt or letting your inner voice tell you how it should be.

* People can be awesome. Let them.

* This is hard on others, too, and it's hard to find that balance between getting what you need and helping others get what they need. But it's important to try.

There's probably more. Strike that, there is more, so much more. I'm looking forward to posting a what-I've-learned entry at the end of this.

So Monday's another round of chemo. Moving forward. We've got this.

Be encouraged~
Dy

Wednesday, September 9

Mid-way Through

Today is my mid-point scan. Part of me thinks we should re-enact the fight of the 6yo me who didn't want to go to Mrs. Schnitzius' class. (It was a pretty epic fight on a six-year-old's scale.) The adult part of me is being rather stoic and philosophical, preparing and planning. Thank God that part still functions. As I went through the prep instructions, I got to the part about clothing. They recommend "comfortable clothing with no metal (like zippers)". I have... Well, I have one piece of clothing that fits this requirement.

A pair of yoga pants.

So I sat in my room, stared at my yoga pants, and wondered for a while if I could actually wear them out in public with a straight face when I know full well that I'm not working out. I'm not even going to walk quickly today. Then I slipped them on and giggled a bit.

A friend texted some support and I shared the situation with her. She reminded me of this, and now we both have this song stuck in our heads...




It's also JakeRabbit's birthday. He's at the lake with friends, celebrating another friend's birthday, so although I miss him and hate that his birthday is Scan Day, I know he's having a lot more fun than we are! My friend (the other boy's mother) sent me a pic of JakeRabbit enjoying a birthday breakfast, complete with bacon, eggs, and a cake. They're going to swim before the storms hit, then hang and play and squirrel around indoors. Not a bad way to turn 12.

OK. First bottle of Redi-Cat down (berry is a lot easier to choke down that the mocha -- it tastes less metallic). Time to crack open the second bottle and take this bad boy on.

Be encouraged~
Dy